Data Dictionary: ACS 2011 (1-Year Estimates)
you are here: choose a survey survey data set table details
Data Source: U.S. Census Bureau
Table: B10052. Disability Status Of Grandparents Living With Own Grandchildren Under 18 Years By Responsibility For Own Grandchildren And Age Of Grandparent [11]
Universe: Universe: Civilian grandparents living with own grandchildren under 18 years
Table Details
B10052. Disability Status Of Grandparents Living With Own Grandchildren Under 18 Years By Responsibility For Own Grandchildren And Age Of Grandparent
Universe: Universe: Civilian grandparents living with own grandchildren under 18 years
Relevant Documentation:
Excerpt from: Social Explorer; U.S. Census Bureau; American Community Survey 2011 Summary File: Technical Documentation.
 
Disability Status
Under the conceptual framework of disability described by the Institute of Medicine (IOM) and the International Classification of Functioning, Disability, and Health (ICF), disability is defined as the product of interactions among individuals' bodies; their physical, emotional, and mental health; and the physical and social environment in which they live, work, or play. Disability exists where this interaction results in limitations of activities and restrictions to full participation at school, at work, at home, or in the community. For example, disability may exist where a person is limited in their ability to work due to job discrimination against persons with specific health conditions; or, disability may exist where a child has difficulty learning because the school cannot accommodate the child's deafness.

Furthermore, disability is a dynamic concept that changes over time as one's health improves or declines, as technology advances, and as social structures adapt. As such, disability is a continuum in which the degree of difficulty may also increase or decrease. Because disability exists along a continuum, various cut-offs are used to allow for a simpler understanding of the concept, the most common of which is the dichotomous "With a disability"/"no disability" differential.

Measuring this complex concept of disability with a short set of six questions is difficult. Because of the multitude of possible functional limitations that may present as disabilities, and in the absence of information on external factors that influence disability, surveys like the ACS are limited to capturing difficulty with only selected activities. As such, people identified by the ACS as having a disability are, in fact, those who exhibit difficulty with specific functions and may, in the absence of accommodation, have a disability. While this definition is different from the one described by the IOM and ICF conceptual frameworks, it relates to the programmatic definitions used in most Federal and state legislation.

In an attempt to capture a variety of characteristics that encompass the definition of disability, the ACS identifies serious difficulty with four basic areas of functioning - hearing, vision, cognition, and ambulation. These functional limitations are supplemented by questions about difficulties with selected activities from the Katz Activities of Daily Living (ADL) and Lawton Instrumental Activities of Daily Living (IADL) scales, namely difficulty bathing and dressing, and difficulty performing errands such as shopping. Overall, the ACS attempts to capture six aspects of disability, which can be used together to create an overall disability measure, or independently to identify populations with specific disability types.

Information on disability is used by a number of federal agencies to distribute funds and develop programs for people with disabilities. For example, data about the size, distribution, and needs of the disabled population are essential for developing disability employment policy. For the Americans with Disabilities Act, data about functional limitations are important to ensure that comparable public transportation services are available for all segments of the population. Federal grants are awarded, under the Older Americans Act, based on the number of elderly people with physical and mental disabilities.

Question/Concept History
In the 2011 American Community Survey, disability concepts were asked in questions 17 through 19. Question 17 had two subparts and was asked of all persons regardless of age. Question 18 had three subparts and was asked of people age 5 years and older. Question 19 was asked of people age 15 years and older.

Hearing difficulty
Hearing difficulty was derived from question 17a, which asked respondents if they were "deaf or ... [had] serious difficulty hearing."

Vision difficulty
Vision difficulty was derived from question 17b, which asked respondents if they were "blind or ... [had] serious difficulty seeing even when wearing glasses." Prior to the 2008 ACS, hearing and vision difficulty were asked in a single question under the label "Sensory disability."

Cognitive difficulty
Cognitive difficulty was derived from question 18a, which asked respondents if due to physical, mental, or emotional condition, they had "serious difficulty concentrating, remembering, or making decisions." Prior to the 2008 ACS, the question on cognitive functioning asked about difficulty "learning, remembering, or concentrating" under the label "Mental disability."

Ambulatory difficulty
Ambulatory difficulty was derived from question 18b, which asked respondents if they had "serious difficulty walking or climbing stairs." Prior to 2008, the ACS asked if respondents had "a condition that substantially limits one or more basic physical activities such as walking, climbing stairs, reaching, lifting, or carrying." This measure was labeled "Physical difficulty" in ACS data products.

Self-care difficulty
Self-care difficulty was derived from question 18c, which asked respondents if they had "difficulty dressing or bathing." Difficulty with these activities are two of six specific Activities of Daily Living (ADLs) often used by health care providers to assess patients' self- care needs. Prior to the 2008 ACS, the question on self-care limitations asked about difficulty "dressing, bathing, or getting around inside the home," under the label "Self-care disability."

Independent living difficulty
Independent living difficulty was derived from question 19, which asked respondents if due to a physical, mental, or emotional condition, they had difficulty "doing errands alone such as visiting a doctor's office or shopping." Difficulty with this activity is one of several Instrumental Activities of Daily Living (IADL) used by health care providers in making care decisions. Prior to the 2008 ACS, a similar measure on difficulty "going outside the home alone to shop or visit a doctor's office" was asked under the label "Go-outside-home disability."

Disability status
Disability status is determined from the answers from these six types of difficulty. For children under 5 years old, hearing and vision difficulty are used to determine disability status. For children between the ages of 5 and 14, disability status is determined from hearing, vision, cognitive, ambulatory, and self-care difficulties. For people aged 15 years and older, they are considered to have a disability if they have difficulty with any one of the six difficulty types.

Limitation of the Data
The universe for most disability data tabulations is the civilian noninstitutionalized population. Some types of GQ populations have disability distributions that are different from the household population. The inclusion of the noninstitutionalized GQ population could therefore have a noticeable impact on the disability distribution. This is particularly true for areas with a substantial noninstitutionalized GQ population. For a discussion of the effect of group quarters data has on estimates of disability status, see "Disability Status and the Characteristics of People in Group Quarters: A Brief Analysis of Disability Prevalence among the Civilian Noninstitutionalized and Total Populations in the American Community Survey" (http://www.census.gov/hhes/www/disability/GQdisability.pdf).

Comparability
Beginning in 2008, questions on disability represent a conceptual and empirical break from earlier years of the ACS. Hence, the Census Bureau does not recommend any comparisons of 2011 disability data to 2007 and earlier ACS disability data.

Research suggests that combining the new separate measures of hearing and vision difficulty to generate a sensory difficulty measure does not create a comparable estimate to the old Sensory disability estimates in prior ACS products. Likewise, the cognitive difficulty, ambulatory difficulty, self-care difficulty, and independent living difficulty measures are based on different sets of activities and different question wordings from similar measures in ACS questionnaires prior to 2008 and thus should not be compared. Because the overall measure of disability status beginning in 2008 is based on different measures of difficulty, these estimates should also not be compared to prior years. For additional information on the differences between the ACS disability questions beginning in 2008 and prior ACS disability questions, see "Review of Changes to the Measurement of Disability in the 2008 American Community Survey" (http://www.census.gov/hhes/www/disability/2008ACS_disability.pdf).

The 2011 disability estimates should also not be compared with disability estimates from Census 2000 for reasons similar to the ones made above. ACS disability estimates should also not be compared with more detailed measures of disability from sources such as the National Health Interview Survey and the Survey of Income and Program Participation.
The 2011 ACS disability estimates are comparable with the ACS disability estimates from 2008,2009, and 2010.
Excerpt from: Social Explorer; U.S. Census Bureau; American Community Survey 2011 Summary File: Technical Documentation.
 
Grandparents as Caregivers
Data on grandparents as caregivers were derived from Questions 25a through 25c. Data were collected on whether a grandchild lives with a grandparent in the household, whether the grandparent has responsibility for the basic needs of the grandchild, and the duration of that responsibility.

Existence of a Grandparent Living with a Grandchild in the Household
This was determined by a "Yes" answer to the question, "Does this person have any of his/her own grandchildren under the age of 18 living in this house or apartment?" This question was asked of people 15 years of age and over. Because of the low numbers of persons under 30 years old living with their grandchildren, data were only tabulated for people 30 and over.
Responsibility for Basic Needs
This question determines if the grandparent is financially responsible for food, shelter, clothing, day care, etc., for any or all grandchildren living in the household. In selected tabulations, grandparent responsibility is further classified by presence of parent (of the grandchild).
Duration of Responsibility
The answer refers to the grandchild for whom the grandparent has been responsible for the longest period of time. Duration categories ranged from less than 6 months to 5 or more years.

Question/Concept History
This set of questions was added to the American Community Survey in 1999 to comply with legislation passed in the 104th Congress requiring that the decennial census program obtain information about grandparents who have primary responsibility for the care of their grandchildren.
The response categories for length of time caring for grandchildren were modified slightly between the 1999 and 2000 American Community Survey questionnaires to match the 2000 decennial census questionnaire. The question has remained unchanged since then.
Limitation of the Data
Before 2006, ACS grandparents data had a universe of people in households (which was the same as that in Census 2000 and the CPS). Beginning in 2006, the population in group quarters (GQ) is included in the ACS. Some types of GQ populations may have grandparents as caregivers distributions that are different from the household population. The inclusion of the GQ population could therefore have a noticeable impact on the grandparents as caregivers distribution. This is particularly true for areas with a substantial GQ population.

Comparability
The data on grandparents as caregivers can be compared to previous ACS years, Census 2000, and to similar data collected in the CPS (with the potential limitation noted above about areas with a substantial GQ population).